This blog is to share my story of living with FTD/MND. I was diagnosed with FTD in February 2013 and then with MND in June of 2013. I am fortunate to be involved in a family business and am still able to work on a limited basis. This blog will contain stories about my family, my business partners, staff and friends.

Monday, October 27, 2014

Light in Our Darkness

As Hal has mentioned he has been keeping us all up to date at the office on what has been happening with his appointments and each step of what to expect. You can imagine that it has been difficult for everyone, but something truly amazing happens everyday that Hal is here. He is our light, our laughter. How he does it I will never know.

Today Hal looked so tired, I like to think part of that was from a good weekend but I know so much more of it is from the illness. Still that doesn't stop him. He comes in and is the brightest person in the room, and when he is having a hard time he still keeps a sense of humor. I live everyday in awe of the person that he is, the person he can still manage to be even in the face of all he has going on.

Just know Hal that all of us gladly shoulder whatever part of your burden that we can if it means having you with us. We love you.

Shelby

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