This blog is to share my story of living with FTD/MND. I was diagnosed with FTD in February 2013 and then with MND in June of 2013. I am fortunate to be involved in a family business and am still able to work on a limited basis. This blog will contain stories about my family, my business partners, staff and friends.

Sunday, July 6, 2014

Botox Shots For My MND

  I received Botox injections for my MND on June 16th and I had a total of 20 injections in my neck, shoulders and legs. The pain I was having is somewhat relieved, but I am now experiencing weakness in my legs and get fatigued easily. The stiffness in my shoulders is still there and will probably have to increase the dosage of the Botox. I was given the lowest dose of Botox and will continue to have this done for at least a year. I was off from work most of that week due to the shots and am starting to get some of my strength back. My next appointment is in October and will wait to see if I will have any injections in my legs. At the same appointment, I did have my regular exam with my Neurologist. He said that things were about the same as the last appointment with the exception of more weakness in my legs and shoulders. I think that the weakness will be what I will have to deal with in the immediate future. Cindy and I have already looked into getting a motorized scooter/wheelchair to help compensate for the continuing weakness. I want to let you know that I feel like I am a walking pharmacy and the Walgreen's that fills my prescriptions knows Cindy by sight and by her first name. I am taking 32 pills per day, 11 different medications, prescription and non-prescription and they help me with my FTD/MND. If I wasn't on this many different types of medications, I wouldn't be able to function on a daily basis. Again, thanks for reading my blog and will have another post soon about how my FTD/MND has affected my partners and staff at The Springs Funeral Services.

Hal