This blog is to share my story of living with FTD/MND. I was diagnosed with FTD in February 2013 and then with MND in June of 2013. I am fortunate to be involved in a family business and am still able to work on a limited basis. This blog will contain stories about my family, my business partners, staff and friends.
There is also a lot that makes me angry. I’m angry that it has to be you, when there are so many others more deserving… And even though I know that sounds horrible and I shouldn’t wish bad things on people, I don’t really care. If I could take this away from you and give it to someone else I would.
The other day my step-son said something about the ice-bucket challenge and when I told him he needed to make a donation if he wanted to do it he had no idea what I was talking about. He didn’t even know it was to raise awareness for ALS, he just thought it was a fun/funny thing to do. I found myself so frustrated with him that I had to leave the room for a minute before I could come back and explain to him what it was all about. And I know that there are so many people out there that think the same thing, they are just participating because it’s fun. It makes me so mad. I know I’m being unreasonable and that this has raised more money for research already in the last few months than last year altogether but I can’t put the anger aside. Maybe I don’t want to let the anger go because then the sadness gets in. I think I’m just better at being angry.
I do want to you know how much I’ve truly come to love you. And if there is ever anything I can do for you I’ll be right there.
Katelynn